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BibTex format

@article{Bruton:2020:10.14324/RFA.04.2.06,
author = {Bruton, J and Jones, K and Jenkins, R and Davies, B and Ward, H and Toledano, M},
doi = {10.14324/RFA.04.2.06},
journal = {Research for All},
pages = {207--219},
title = {Enabling participation of Black and Minority Ethnic (BME) and seldom-heard communities in health research: A case study from the SCAMP adolescent cohort study},
url = {http://dx.doi.org/10.14324/RFA.04.2.06},
volume = {4},
year = {2020}
}

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RIS format (EndNote, RefMan)

TY  - JOUR
AB  - Aim: To investigate barriers and facilitators to BME parental consent for children’s involvement in data-sharing aspects of study on mobile phone and wireless device use (SCAMP). To co-produce solutions to increase participation. Methods: Focus groups, telephone interviews, community event, PPI Café; symposium with public, participants and researchers. Results: Barriers were concerns about the research, practical constraints, poor communication. Facilitators were value of research, benefits to others. Solutions to increase participation were community support and clear, simple communication. Overall, trust in the research and the researchers was a key focus of enabling participation.Sharing recommendations: Symposium generated ideas about improving participation including tailoring participant information, engaging with local advocates, involving people in research design and delivery.Key words: Seldom heard, BME, research participation, co-production, PPI, parental consent
AU  - Bruton,J
AU  - Jones,K
AU  - Jenkins,R
AU  - Davies,B
AU  - Ward,H
AU  - Toledano,M
DO  - 10.14324/RFA.04.2.06
EP  - 219
PY  - 2020///
SN  - 2399-8121
SP  - 207
TI  - Enabling participation of Black and Minority Ethnic (BME) and seldom-heard communities in health research: A case study from the SCAMP adolescent cohort study
T2  - Research for All
UR  - http://dx.doi.org/10.14324/RFA.04.2.06
UR  - http://hdl.handle.net/10044/1/80087
VL  - 4
ER  -

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McGrath-Lone L et al. Variation in discussion about and participation in cancer research and its relationship with patient experience, poster presentation, National Cancer Intelligence Network, PHE Cancer Outcomes Conference, Birmingham, 9-10 June 2014