In this section
@article{Papageorgiou:2020:10.1136/bmjopen-2019-033202,
author = {Papageorgiou, V and Wharton-Smith, A and Campos-Matos, I and Ward, H},
doi = {10.1136/bmjopen-2019-033202},
journal = {BMJ Open},
title = {Patient data-sharing for immigration enforcement: a qualitative study of healthcare providers in England},
url = {http://dx.doi.org/10.1136/bmjopen-2019-033202},
volume = {10},
year = {2020}
}
TY - JOUR
AB - Aim: To explore healthcare providers’ perceptions and experiences of the implications of a patient data-sharing agreement between National Health Service (NHS) Digital and the Home Office on access to NHS services and quality of care received by migrant patients in England.Design: A qualitative study using semi-structured interviews, thematic analysis and constant-comparison approach.Participants: Eleven healthcare providers and one non-clinical volunteer working in community or hospital-based settings who had experience of migrants accessing NHS England services. Interviews were carried out in 2018.Setting: England.Results: Awareness and understanding of the patient data-sharing agreement varied among participants, who associated this with a perceived lack of transparency by the government. Participants provided insight into how they thought the data-sharing agreement was negatively influencing migrants’ health-seeking behaviour, their relationship with clinicians and the safety and quality of their care. They referred to the policy as a challenge to their core ethical principles, explicitly patient confidentiality and trust, which varied depending on their clinical specialty.Conclusions: A perceived lack of transparency during the policy development process can result in suspicion or mistrust towards government among the health workforce, patients and public, which is underpinned by a notion of power or control. The patient data-sharing agreement was considered a threat to some of the core principles of the NHS and its implementation as adversely affecting healthcare access and patient safety. Future policy development should involve a range of stakeholders including civil society, healthcare professionals and ethicists, and include more meaningful assessments of the impact on healthcare and public health.
AU - Papageorgiou,V
AU - Wharton-Smith,A
AU - Campos-Matos,I
AU - Ward,H
DO - 10.1136/bmjopen-2019-033202
PY - 2020///
SN - 2044-6055
TI - Patient data-sharing for immigration enforcement: a qualitative study of healthcare providers in England
T2 - BMJ Open
UR - http://dx.doi.org/10.1136/bmjopen-2019-033202
UR - http://hdl.handle.net/10044/1/76862
VL - 10
ER -
PERC Director and Co-Founder
Prof. Helen Ward
h.ward@imperial.ac.uk
For enquiries about PERC's research activity, please email:
patientexperience@imperial.ac.uk
For enquiries about public involvement in research, please email:
publicinvolvement@imperial.ac.uk
