In this section
@article{Philip:2019:10.1136/bmjresp-2019-000478,
author = {Philip, K and Gaduzo, S and Rogers, J and Laffan, M and Hopkinson, N},
doi = {10.1136/bmjresp-2019-000478},
journal = {BMJ Open Respiratory Research},
title = {Patient experience of COPD care – outcomes from the British Lung Foundation Patient Passport},
url = {http://dx.doi.org/10.1136/bmjresp-2019-000478},
volume = {6},
year = {2019}
}
TY - JOUR
AB - Introduction The British Lung Foundation COPD Patient Passport (www.blf.org.uk/passport) was developed as a resource to help people with COPD and clinicians to consider the care received and identify essential omissions. We used the online data collected to evaluate the delivery of COPD care in the UK from a patient perspective. MethodsThe patient passport consists of 13 questions relating to key aspects of COPD care including: spirometry confirmation of diagnosis, understanding their diagnosis, support and a written management plan, vaccinations, smoking cessation, physical activity, exercise, eating well, pulmonary rehabilitation, exacerbations, medications, and yearly reviews. Data were presented as proportions with an answer corresponding to good care, and plotted over time to identify trends.ResultsAfter removing identifiable duplicates, data from 41,769 entries, completed online between November 2014 and April 2019, remained (Table 1). 24% reported getting support to manage their care and a written action plan; 53% could spot the signs of an acute exacerbation; 34% had discussed pulmonary rehabilitation; and 41% stated they understood their COPD, and their doctor or nurse had explained where to find information, advice and emotional support. A quarter reported not receiving flu vaccination and a third of those who smoke were not offered support to quit smoking. Even the strongest areas including spirometry-confirmed diagnosis, and knowing the importance of being active and eating well, achieved only around 80%. Response patterns remained stable or worsened over time. DiscussionResponses to the BLF COPD Patient Passport identify substantial gaps in patients’ experience of care, which did not appear to improve during the 5 years covered. These data provide a unique yet commonly overlooked perspec
AU - Philip,K
AU - Gaduzo,S
AU - Rogers,J
AU - Laffan,M
AU - Hopkinson,N
DO - 10.1136/bmjresp-2019-000478
PY - 2019///
SN - 2052-4439
TI - Patient experience of COPD care – outcomes from the British Lung Foundation Patient Passport
T2 - BMJ Open Respiratory Research
UR - http://dx.doi.org/10.1136/bmjresp-2019-000478
UR - http://hdl.handle.net/10044/1/73398
VL - 6
ER -